{"id":22492,"date":"2025-11-10T15:03:03","date_gmt":"2025-11-10T13:03:03","guid":{"rendered":"https:\/\/kaukenoparama.lt\/?p=22492"},"modified":"2025-11-10T15:03:14","modified_gmt":"2025-11-10T13:03:14","slug":"pagalba-majui","status":"publish","type":"post","link":"https:\/\/kaukenoparama.lt\/en\/pagalba\/pagalba-majui\/","title":{"rendered":"Pagalba Majui"},"content":{"rendered":"

Majui dveji, ta\u010diau jo raida atitinka dviej\u0173 m\u0117nesi\u0173 k\u016bdikio raid\u0105. Belaukdami Majaus, tre\u010diosios at\u017ealos, t\u0117vai atliko visus \u012fmanomus tyrimus, nor\u0117dami \u012fsitikinti, jog viskas tvarkoje. Visi tyrim\u0173 atsakymai buvo ideal\u016bs, o tik v\u0117liau paai\u0161k\u0117jo, kad berniuko patologija yra tokia reta, jog jos neparodo jokie \u012fprasti tyrimai.
\nVos gim\u0119s ma\u017eylis apgal APGAR skal\u0119 \u012fvertintas 9 balais i\u0161 10, ta\u010diau vos gr\u012f\u017eus \u012f palat\u0105 \u0117m\u0117 ai\u0161k\u0117ti, jog ka\u017ekas naujagimiui negerai. Jis vis\u0105 nakt\u012f dejavo, buvo neramus, buvo ypa\u010d sunku j\u012f pamaitinti. Prie\u0161 i\u0161vykstant \u012f namus atliktas klausos tyrimas parod\u0117, kad berniukas negirdi, ta\u010diau medikai min\u0117jo, jog tai gali b\u016bti d\u0117l gimdymo skys\u010di\u0173, u\u017esilikusi\u0173 ausyt\u0117se. Visgi, tolesni tyrimai parod\u0117 \u0161imtaprocentin\u012f Majaus kurtum\u0105.
\nPirmieji trys m\u0117nesiai namuose buvo itin sunk\u016bs ir herojui ir jo \u0161eimai \u2013 ma\u017eylis buvo labai neramus, nuolat verk\u0117, labai da\u017enai sirgo. Kai berniukui buvo keturi m\u0117nesiai, t\u0117veliai kreip\u0117si \u012f raidos specialistus, nes Majus net neband\u0117 laikyti galvyt\u0117s. Buvo pasitelkti masa\u017eai, ta\u010diau medikai pasteb\u0117jo, jog herojaus b\u016bkl\u0117 primena vaiku\u010dius, turin\u010dius cerebrinio paraly\u017eiaus diagnoz\u0119.
\nKai Majui buvo a\u0161tuoni m\u0117nesiai, jam atliktas tyrimas patvirtino itin ret\u0105 lig\u0105 \u2013 X chromosomos BCAP31 geno 4 egzono hemizigotin\u0119 delecij\u0105., patologij\u0105, kuriai n\u0117ra jokio gydymo. Herojui reikalingi nuolatiniai u\u017esi\u0117mimai su specialistais \u2013 masa\u017eai, baseinas, reabilitacija, kineziterapija, ergoterapija. \u0160iandien Majus jau turi vien\u0105 klausos aparat\u0105 ir kartu su gydytoj\u0173 pagalba stengiasi ma\u017eais \u017eingsneliais prisijaukinti gars\u0173 pasaul\u012f.
\nMajaus kelion\u0117 n\u0117ra lengva, ta\u010diau kiekvienas ma\u017eas pasiekimas yra did\u017eiulis stimulas ir berniukui, ir jo artimiesiems, nenuleisti rank\u0173 ir jud\u0117ti pirmyn. Nor\u0117dami prisid\u0117ti prie kovotojo stipr\u0117jimo, finansavome itin reikaling\u0105 reabilitacij\u0105 pagal Vojta metod\u0105, skirdami 2 760 Eur param\u0105. I\u0161 visos \u0161irdies d\u0117kojame Anna Mesha. Vie\u0161butis ir Anna Mesha. Butas u\u017e skirtas aukas m\u016bs\u0173 fondo globojamiems sunkiai sergantiems vaikams. J\u016bs\u0173 gerumas \u0161\u012f kart\u0105 virto Majaus ir jo \u0161eimos d\u0117kingumu bei galimybe stipr\u0117ti. A\u010di\u016b Jums, kad \u012ftraukiate savo bendruomen\u0119 \u012f prasming\u0105 fondo veikl\u0105 ir skatinate dalintis \u0161iluma su tais, kuriems jos labiausiai reikia.<\/p>\n","protected":false},"excerpt":{"rendered":"

Majui dveji, ta\u010diau jo raida atitinka dviej\u0173 m\u0117nesi\u0173 k\u016bdikio raid\u0105. Belaukdami Majaus, tre\u010diosios at\u017ealos, t\u0117vai atliko visus \u012fmanomus tyrimus, nor\u0117dami \u012fsitikinti, jog viskas tvarkoje. Visi tyrim\u0173 atsakymai buvo ideal\u016bs, o tik v\u0117liau paai\u0161k\u0117jo, kad berniuko patologija yra tokia reta, jog jos neparodo jokie \u012fprasti tyrimai. Vos gim\u0119s ma\u017eylis apgal APGAR skal\u0119 \u012fvertintas 9 balais i\u0161 10, ta\u010diau vos gr\u012f\u017eus \u012f palat\u0105 \u0117m\u0117 ai\u0161k\u0117ti, jog ka\u017ekas naujagimiui negerai. Jis vis\u0105 nakt\u012f dejavo, buvo neramus, buvo ypa\u010d sunku j\u012f pamaitinti. Prie\u0161 i\u0161vykstant…<\/p>\n","protected":false},"author":4,"featured_media":22493,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[48],"tags":[47],"class_list":["post-22492","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-pagalba","tag-pagalbakuriosreikia"],"acf":[],"yoast_head":"\nPagalba Majui - Rimanto Kauk\u0117no paramos grup\u0117<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/kaukenoparama.lt\/en\/pagalba\/pagalba-majui\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Pagalba Majui - Rimanto Kauk\u0117no paramos grup\u0117\" \/>\n<meta property=\"og:description\" content=\"Majui dveji, ta\u010diau jo raida atitinka dviej\u0173 m\u0117nesi\u0173 k\u016bdikio raid\u0105. Belaukdami Majaus, tre\u010diosios at\u017ealos, t\u0117vai atliko visus \u012fmanomus tyrimus, nor\u0117dami \u012fsitikinti, jog viskas tvarkoje. Visi tyrim\u0173 atsakymai buvo ideal\u016bs, o tik v\u0117liau paai\u0161k\u0117jo, kad berniuko patologija yra tokia reta, jog jos neparodo jokie \u012fprasti tyrimai. Vos gim\u0119s ma\u017eylis apgal APGAR skal\u0119 \u012fvertintas 9 balais i\u0161 10, ta\u010diau vos gr\u012f\u017eus \u012f palat\u0105 \u0117m\u0117 ai\u0161k\u0117ti, jog ka\u017ekas naujagimiui negerai. Jis vis\u0105 nakt\u012f dejavo, buvo neramus, buvo ypa\u010d sunku j\u012f pamaitinti. 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Belaukdami Majaus, tre\u010diosios at\u017ealos, t\u0117vai atliko visus \u012fmanomus tyrimus, nor\u0117dami \u012fsitikinti, jog viskas tvarkoje. Visi tyrim\u0173 atsakymai buvo ideal\u016bs, o tik v\u0117liau paai\u0161k\u0117jo, kad berniuko patologija yra tokia reta, jog jos neparodo jokie \u012fprasti tyrimai. Vos gim\u0119s ma\u017eylis apgal APGAR skal\u0119 \u012fvertintas 9 balais i\u0161 10, ta\u010diau vos gr\u012f\u017eus \u012f palat\u0105 \u0117m\u0117 ai\u0161k\u0117ti, jog ka\u017ekas naujagimiui negerai. Jis vis\u0105 nakt\u012f dejavo, buvo neramus, buvo ypa\u010d sunku j\u012f pamaitinti. 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