{"id":3518,"date":"2023-11-06T09:54:59","date_gmt":"2023-11-06T07:54:59","guid":{"rendered":"https:\/\/kaukenoparama.lt\/?p=3518"},"modified":"2023-11-06T09:54:59","modified_gmt":"2023-11-06T07:54:59","slug":"pagalba-arejai","status":"publish","type":"post","link":"https:\/\/kaukenoparama.lt\/en\/pagalba\/pagalba-arejai\/","title":{"rendered":"Pagalba Ar\u0117jai"},"content":{"rendered":"<p>Susipa\u017einkite su kovotoja Ar\u0117ja \u2013 dabar merginai 17 met\u0173. Ji gim\u0117 visi\u0161kai sveika, ta\u010diau einant 4 gyvenimo m\u0117nesiui jos t\u0117vai \u0117m\u0117 pasteb\u0117ti pirmuosius ligos po\u017eymius. Kokia tai diagnoz\u0117 \u2013 tuo metu net negal\u0117jo pagalvoti, ta\u010diau sunkiai augantis k\u016bdikio svoris, net ir taikant primaitinim\u0105, nedav\u0117 ramyb\u0117s.<\/p>\n<p>Kai mergaitei buvo kiek daugiau nei 2 metai, buvo diagnozuota mi\u0161ri cistin\u0117s fibroz\u0117s forma, kuri paveikia ir plau\u010dius ir \u017earnyn\u0105. \u0160i klastinga liga paveikia plau\u010dius negr\u012f\u017etamai, o mi\u0161ri Ar\u0117jos turima forma paveikia dar ir \u017earnyn\u0105, sukelia negr\u012f\u017etamas komplikacijas. Toki\u0173 merginos gyvenime buvo itin daug \u2013 teko \u012fk\u0119sti 3 bronchoskopijas, buvo valomi plau\u010diai. Po \u0161i\u0173 proced\u016br\u0173 Ar\u0117ja itin sunkiai atsigaudavo. Vien\u0105 kart\u0105 jos plau\u010diai jau buvo ties ply\u0161imo riba&#8230; \u0160i\u0105 lig\u0105 turintys pacientai mir\u0161ta b\u016btent d\u0117l pana\u0161i\u0173 komplikacij\u0173 \u2013 plau\u010di\u0173 u\u017esikim\u0161imo, u\u017ed\u016bsimo. Iki kol Lietuvoje neatliekama plau\u010di\u0173 transplantacija \u2013 \u0161eimai lieka laukti, tik\u0117ti ir i\u0161bandyti brangius nekompensuojamus vaistus.<\/p>\n<p>Apie gyvyb\u0119 gelb\u0117jan\u010dius vaistus, skirtus cistine fibroze sergantiems vaikams, yra gird\u0117j\u0119s kiekvienas, susid\u016br\u0119s su \u0161ia liga. Vaistai leid\u017eia pacientui lengviau kv\u0117puoti, oringas plotas nema\u017e\u0117ja, gaminasi ma\u017eiau plau\u010di\u0173 sekreto, kur\u012f darosi sunku i\u0161kos\u0117ti. Kitaip tariant \u2013 \u0161is vaistas leid\u017eia gyventi su ma\u017eiau baim\u0117s, daugiau galimybi\u0173 u\u017esiimti norima veikla, nedusti lipant laiptais. Ar\u0117jos mama mums sak\u0117: \u201enuo to laiko, kai mano dukra vartoja \u0161iuos vaistus \u2013 nakt\u012f galiu miegoti, nepuolu prib\u0117gusi tikrinti ar ji vis dar kv\u0117puoja&#8230;\u201c<\/p>\n<p>\u0160is reikalingas vaistas, kur\u012f nupirkome Ar\u0117jai \u2013 Lietuvoje n\u0117ra kompensuojamas, ta\u010diau gyvenimo trukm\u0119 gali prailginti net iki 50 met\u0173. \u0160\u012f vaist\u0105 galima vartoti tik tiems pacientams, kurie n\u0117ra pasiek\u0119 itin blogos bukl\u0117s. Atlikus tyrimus herojei pamatyta, jog jos plau\u010diai yra pilkos spalvos. Tai rei\u0161kia, jog vaist\u0105 privalo prad\u0117ti vartoti dabar, nes v\u0117liau gali b\u016bti tiesiog per v\u0117lu&#8230; \u0160eima ry\u017eosi \u0161iam \u017eingsniui, \u017einodami, jog po m\u0117nesio reik\u0117s dar vienos, ir dar vienos vaist\u0173 doz\u0117s ir taip iki tol, kol jie bus pakelbti kompensuojamais. Visgi, laukti tiesiog nebegalima, nes merginos b\u016bkl\u0117 nuolat blog\u0117ja, trukdydama gyventi pilnavert\u012f gyvenim\u0105, eiti \u012f mokykl\u0105. Vaist\u0173 doz\u0117 m\u0117nesiui \u2013 beveik 17 t\u016bkstan\u010di\u0173 eur\u0173. Tai ne\u012ftik\u0117tinai didel\u0117 suma \u0161iai \u0161eima, tod\u0117l i\u0161ties\u0117me pagalbos rank\u0105 Ar\u0117jai.<\/p>\n<p>Norime i\u0161trati did\u017eiausi\u0105 a\u010di\u016b visiems \u017ei\u016br\u0117jusiems m\u016bs\u0173 kasmetin\u012f labdaros koncert\u0105 U\u017d PERGAL\u0118 GYVENTI ir jo metu aukojusiems m\u016bs\u0173 herojams. J\u016bs\u0173 vis\u0173 d\u0117ka 16981, 98 Eur sum\u0105 gal\u0117jome skirti Ar\u0117jos vaistams nupirkti. Nuo\u0161ird\u017eiausias a\u010di\u016b visiems, kurie nelieka abejingi ir prisideda prie pagalbos ypa\u010d sunkiems pacientams.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Susipa\u017einkite su kovotoja Ar\u0117ja \u2013 dabar merginai 17 met\u0173. Ji gim\u0117 visi\u0161kai sveika, ta\u010diau einant 4 gyvenimo m\u0117nesiui jos t\u0117vai \u0117m\u0117 pasteb\u0117ti pirmuosius ligos po\u017eymius. Kokia tai diagnoz\u0117 \u2013 tuo metu net negal\u0117jo pagalvoti, ta\u010diau sunkiai augantis k\u016bdikio svoris, net ir taikant primaitinim\u0105, nedav\u0117 ramyb\u0117s. Kai mergaitei buvo kiek daugiau nei 2 metai, buvo diagnozuota mi\u0161ri cistin\u0117s fibroz\u0117s forma, kuri paveikia ir plau\u010dius ir \u017earnyn\u0105. \u0160i klastinga liga paveikia plau\u010dius negr\u012f\u017etamai, o mi\u0161ri Ar\u0117jos turima forma paveikia dar ir \u017earnyn\u0105,&#8230;<\/p>\n","protected":false},"author":4,"featured_media":3519,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[48],"tags":[47],"class_list":["post-3518","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-pagalba","tag-pagalbakuriosreikia"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.4 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Pagalba Ar\u0117jai - Rimanto Kauk\u0117no paramos grup\u0117<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/kaukenoparama.lt\/en\/pagalba\/pagalba-arejai\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Pagalba Ar\u0117jai - Rimanto Kauk\u0117no paramos grup\u0117\" \/>\n<meta property=\"og:description\" content=\"Susipa\u017einkite su kovotoja Ar\u0117ja \u2013 dabar merginai 17 met\u0173. Ji gim\u0117 visi\u0161kai sveika, ta\u010diau einant 4 gyvenimo m\u0117nesiui jos t\u0117vai \u0117m\u0117 pasteb\u0117ti pirmuosius ligos po\u017eymius. Kokia tai diagnoz\u0117 \u2013 tuo metu net negal\u0117jo pagalvoti, ta\u010diau sunkiai augantis k\u016bdikio svoris, net ir taikant primaitinim\u0105, nedav\u0117 ramyb\u0117s. Kai mergaitei buvo kiek daugiau nei 2 metai, buvo diagnozuota mi\u0161ri cistin\u0117s fibroz\u0117s forma, kuri paveikia ir plau\u010dius ir \u017earnyn\u0105. \u0160i klastinga liga paveikia plau\u010dius negr\u012f\u017etamai, o mi\u0161ri Ar\u0117jos turima forma paveikia dar ir \u017earnyn\u0105,...\" \/>\n<meta property=\"og:url\" content=\"https:\/\/kaukenoparama.lt\/en\/pagalba\/pagalba-arejai\/\" \/>\n<meta property=\"og:site_name\" content=\"Rimanto Kauk\u0117no paramos grup\u0117\" \/>\n<meta property=\"article:published_time\" content=\"2023-11-06T07:54:59+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/kaukenoparama.lt\/wp-content\/uploads\/2023\/11\/IMG_0773.jpeg\" \/>\n\t<meta property=\"og:image:width\" content=\"1366\" \/>\n\t<meta property=\"og:image:height\" content=\"2048\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"emilija\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"emilija\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/kaukenoparama.lt\/en\/pagalba\/pagalba-arejai\/\",\"url\":\"https:\/\/kaukenoparama.lt\/en\/pagalba\/pagalba-arejai\/\",\"name\":\"Pagalba Ar\u0117jai - Rimanto Kauk\u0117no paramos grup\u0117\",\"isPartOf\":{\"@id\":\"https:\/\/kaukenoparama.lt\/en\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/kaukenoparama.lt\/en\/pagalba\/pagalba-arejai\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/kaukenoparama.lt\/en\/pagalba\/pagalba-arejai\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/kaukenoparama.lt\/wp-content\/uploads\/2023\/11\/IMG_0773.jpeg\",\"datePublished\":\"2023-11-06T07:54:59+00:00\",\"author\":{\"@id\":\"https:\/\/kaukenoparama.lt\/en\/#\/schema\/person\/ddde772be62f41f03e078902828bf555\"},\"breadcrumb\":{\"@id\":\"https:\/\/kaukenoparama.lt\/en\/pagalba\/pagalba-arejai\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/kaukenoparama.lt\/en\/pagalba\/pagalba-arejai\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/kaukenoparama.lt\/en\/pagalba\/pagalba-arejai\/#primaryimage\",\"url\":\"https:\/\/kaukenoparama.lt\/wp-content\/uploads\/2023\/11\/IMG_0773.jpeg\",\"contentUrl\":\"https:\/\/kaukenoparama.lt\/wp-content\/uploads\/2023\/11\/IMG_0773.jpeg\",\"width\":1366,\"height\":2048},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/kaukenoparama.lt\/en\/pagalba\/pagalba-arejai\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Main page\",\"item\":\"https:\/\/kaukenoparama.lt\/en\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Help\",\"item\":\"https:\/\/kaukenoparama.lt\/en\/help\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"Pagalba Ar\u0117jai\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/kaukenoparama.lt\/en\/#website\",\"url\":\"https:\/\/kaukenoparama.lt\/en\/\",\"name\":\"Rimanto Kauk\u0117no paramos grup\u0117\",\"description\":\"Pad\u0117kite sunkiai sergantiems vaikams!\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/kaukenoparama.lt\/en\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Person\",\"@id\":\"https:\/\/kaukenoparama.lt\/en\/#\/schema\/person\/ddde772be62f41f03e078902828bf555\",\"name\":\"emilija\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Pagalba Ar\u0117jai - Rimanto Kauk\u0117no paramos grup\u0117","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/kaukenoparama.lt\/en\/pagalba\/pagalba-arejai\/","og_locale":"en_US","og_type":"article","og_title":"Pagalba Ar\u0117jai - Rimanto Kauk\u0117no paramos grup\u0117","og_description":"Susipa\u017einkite su kovotoja Ar\u0117ja \u2013 dabar merginai 17 met\u0173. Ji gim\u0117 visi\u0161kai sveika, ta\u010diau einant 4 gyvenimo m\u0117nesiui jos t\u0117vai \u0117m\u0117 pasteb\u0117ti pirmuosius ligos po\u017eymius. Kokia tai diagnoz\u0117 \u2013 tuo metu net negal\u0117jo pagalvoti, ta\u010diau sunkiai augantis k\u016bdikio svoris, net ir taikant primaitinim\u0105, nedav\u0117 ramyb\u0117s. 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